EXPERIENCE REPORT: EXPERIENCE OF FAMILY AND OR CAREGIVER PEDIATRIC NEPHROLOGY PATIENTS IN AN INTEGRAL MEDICINE REFERENCE HOSPITAL IN THE NORTHEAST


EXPERIENCE REPORT: EXPERIENCE OF FAMILY AND OR CAREGIVER PEDIATRIC NEPHROLOGY PATIENTS IN AN INTEGRAL MEDICINE REFERENCE HOSPITAL IN THE NORTHEAST


Celestino Maciel Pedrosa Junior1, Geraldo Melo2, Laryssa Santana3, Patrícia Stankowich4, Eduardo Falcão5, Thalita Galvão6
1Mestrando do Mestrado Profissional em Psicologia da Saúde da Faculdade Pernambucana em Saúde e Psicólogo clínico-hospitalar do Real Hospital Português de Beneficência em Pernambuco e do Instituto de Medicina Integral Prof. Fernando Figueira – IMIP.2Mestrando do Mestrado Profissional em Psicologia da Saúde da Faculdade Pernambucana em Saúde e Psicólogo do Tribunal de Justiça de Pernambuco. 3Mestranda do Mestrado Profissional em Psicologia da Saúde da Faculdade Pernambucana em Saúde e Nutricionista. 4Mestranda do Mestrado Profissional em Psicologia da Saúde da Faculdade Pernambucana em Saúde, Psicóloga, Psicanalista, Filósofa e Escritora. 5Mestrando do Mestrado Profissional em Psicologia da Saúde da Faculdade Pernambucana em Saúde e Psicólogo do Instituto de Medicina Integral Prof. Fernando Figueira – IMIP. 6Mestranda do Mestrado Profissional em Psicologia da Saúde da Faculdade Pernambucana em Saúde em Saúde e Psicóloga.


American Journal of Anatomy and Physiology 2D

Introduction: CKD is also called Chronic Kidney Disease (CKD) and, when installed, compromises renal functions in a slow, progressive and irreversible manner. Therefore, in some cases, renal replacement therapy treatments are necessary, including hemodialysis (HD). The family, in turn, also experiences changes in their roles and dynamics of functioning that influence the act of taking care of themselves and others.

Objective: To promote reflections on the life projects of family members/caregivers of Pediatric Nephrology Hemodialysis patients at a reference hospital in Integral Medicine in the Northeast.

Methods: Experience report through a group meeting with host intervention, listening directed to life projects aimed at family members and or companions of hemodialysis patients.

Results: It was perceived from the reports that the task of caring is complex and permeated by diverse and contradictory feelings, but that many of the people who experience this experience felt emotionally weakened. We also verified that responsibility is transferred as an additional action to the family, which in its daily life is obliged to accumulate the function of “living for” the patient’s dialysis treatment. Surrounded by fears and uncertainties, they “abdicated” from work, studies, friends, leisure, personal care, despite nurturing a common feeling, present in all expressions: faith.

Considerations: With this intervention, although brief, one can understand the importance of providing the family member or companion with a moment of reflection and exchange of experiences.


Keywords: Chronic Kidney Disease, Hemodialysis, Family, Caregiver, Experience Report.

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How to cite this article:
Celestino Maciel Pedrosa Junior, Geraldo Melo, Laryssa Santana, Patrícia Stankowich, Eduardo Falcão, Thalita Galvão. EXPERIENCE REPORT: EXPERIENCE OF FAMILY AND OR CAREGIVER PEDIATRIC NEPHROLOGY PATIENTS IN AN INTEGRAL MEDICINE REFERENCE HOSPITAL IN THE NORTHEAST.American Journal of Anatomy and Physiology, 2020, 3:9. DOI:10.28933/ajap-2020-01-2005